I’ve recently heard from this amazing network of bloggers posting about their experience on the journey of finding out about the CDH1 mutation, going through testing and having a gastrectomy. We all seem to be at different stages in the process, so I wanted to share these links that aren’t listed off of nostomachforcancer.org. I know I’m missing some links I’d found through the Facebook support site too. I’ll have to add them later. 🙂
I’m so thankful for the internet so you don’t feel alone in your journey. There’s quite a few of us across the globe!
The Daily Dump
http://rachelkinney.wordpress.com/
http://cytosinedeleted.wordpress.com/
It’s the beginning, not the end.
http://www.beginningnottheend.blogspot.com.au/
Genetically Challenged
http://geneticallychallenged.wordpress.com/