I’ve recently heard from this amazing network of bloggers posting about their experience on the journey of finding out about the CDH1 mutation, going through testing and having a gastrectomy. We all seem to be at different stages in the process, so I wanted to share these links that aren’t listed off of nostomachforcancer.org. I know I’m missing some links I’d found through the Facebook support site too. I’ll have to add them later. 🙂
I’m so thankful for the internet so you don’t feel alone in your journey. There’s quite a few of us across the globe!
The Daily Dump
http://rachelkinney.wordpress.com/
http://cytosinedeleted.wordpress.com/
It’s the beginning, not the end.
http://www.beginningnottheend.blogspot.com.au/
Genetically Challenged
http://geneticallychallenged.wordpress.com/
Thanks for sharing my link!
Thanks for posting my blog! I’d been following yours leading up to and after my surgery, looking for pointers and some motivation to try foods, etc. I had no idea you were reading mine! 🙂
Thanks so much for sharing mine, and others’ pages. It’s great to read about some other similar stories 🙂
Thanks for posting my blog as well! I just found another interesting blogger: http://geneticallychallenged.wordpress.com/
Our community is pretty incredible.
Thanks for helping us all get through it no matter what stage we are at.
Thanks for posting these blogs….it helps knowing and reading what others are going through too!!!